The Huntington Society of Canada (HSC) board of directors is composed of volunteers elected by the members at the Annual General Meeting. The board is responsible for governing the organization, which includes: HSC’s mission and strategic planning; policy development; stewardship of resources; and accountability to members, donors, and the public.
The chief executive officer is the senior staff person who reports directly to the board.
Board directors serve a two-year term, and may stand for re-election for two further two-year terms. A few vacancies occur each year, since directors’ terms are staggered. Nominations are recommended to the membership by the governance committee of the board.
2023-2024 HSC Board of Directors
As of January 1, 2024
Executive
- Mack Erno – Chair
- Brynne Dalmao – Past Chair
- Diane Tullson – Vice Chair
- Bob Scriven – Secretary
- Cindy Rainsford – Treasurer
HSC Board Directors
- Geneviève Bélanger (Huntington Society of Québec Representative)
- Megan Burd (YPAHD Representative)
- Ron Muller
- Andrew Wright
- Heidi Bredenholler-Prasad
- Lise Munsie
-
Dillon Sookbir
- Malay Matalia
- David Morin
- Etienne Murgues
Hailing from all corners of Canada, the board of directors currently meets four times a year and is responsible for governing HSC. This includes HSC’s mission and strategic planning; policy development; stewardship of resources; and accountability to members, donors, and the public.
One seat on the board is reserved for a representative of the Huntington Society of Québec, while another seat is reserved for a representative of Young People Affected by HD (YPAHD), our virtual youth chapter. Each director is elected for a term of two years.
The election of the board of directors takes place at each annual general meeting of the members, with an emphasis on recruiting individuals that can bring specific expertise to the governance of HSC.
Board Committees
Executive/Finance Committee: This committee is comprised of the chair, vice-chair, secretary, treasurer and CEO.
Mandate: Reviews the operating plan and budget prepared by the CEO; recommends whether to adopt the budget; reviews quarterly financial statements; reviews insurance coverage and risk protection.
Board Governance/Nominating Committee: This committee is comprised of the past chair, chair, vice-chair and 2–3 other board directors.
Mandate: Evaluates the effectiveness of the board; assesses the skills and competencies of the board; recruits and orients new members; evaluates existing Board policies and develops new ones.
Investment Committee: This committee is comprised of the chair, vice-chair, treasurer, 2–3 other members appointed by the board. Attendees also include the CEO and director of finance.
Mandate: Reviews the performance of the Society’s investment portfolio; ensures the portfolio meets board policies; reviews the appropriateness of the investment policy.
Audit Committee: This committee is comprised of the chair, vice-chair, treasurer and 1–2 other board directors. Attendees also include the CEO and director of finance.
Mandate: Reviews the audit plan; approves the audited financial statements; reviews internal controls; ensures proper financial stewardship.
Research Committee: This committee is comprised of the board research representative, national and international HD researchers and the CEO.