Community Education Forums (CEFs) are back! We will offer three sessions on different topics in 2024.
With our CEFs, HSC provides a forum wherein individuals, their carers and families can meet to learn about the most recent updates in HD, network with community members and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD. These online webinars are free, and you will require an internet connection and a device with speakers to attend. We recommend a computer for the best viewing experience, but phones and tablets will also work.
CEF #2: “Hurry Up and Wait”: Approaches for Further Along One’s HD Road
Saturday October 19 at 1:30 p.m. EDT.
Session Summary: We’ll look at ways to accommodate the cognitive challenges your loved ones face both at the start as well as further along their journey with Huntington disease (HD). Activities will help us understand more fully the experience of daily challenges in the lives of people facing HD. We’ll talk about how to approach conversations, help with bathing and self-care, and stay connected. You’ll leave this session with practical tips and a renewed care perspective.
About Jimmy: Jimmy Pollard is trained as a special education teacher and formerly licensed as a nursing home administrator in the US. For 37 years his career has been caring for people living with Huntington disease in their homes, care homes, hospitals and other residential settings. His focus continues to be a better understanding and more effective accommodation of HD’s cognitive challenges by family and professional carers.
Previous Community Education Forums
CEF #1: Speech Language Pathology and Huntington disease
Saturday April 13 at 1:30 p.m. EDT.
Speech Language Pathology and HD Session Summary: Did you know that HD can change our ability to communicate and swallow? SLPs play a crucial role in managing and treating these changes at all stages of the disease. Jasmine will discuss signs and symptoms and what you can do about them. This is the perfect opportunity for anyone who wants to learn about:
- Swallowing safety and red flags
- Speech and voice changes and treatment options
- Cognitive-communication difficulties and management strategies
- Saliva challenges, including drooling and dry mouth
- Answers to your questions
About Jasmine: Jasmine helped create British Columbia’s first full-time public SLP program for people with neurological movement disorders. This program is located at the Victoria Parkinson’s and Movement Disorders Clinic, which is a specialized neurology clinic. Jasmine is also the founder of SpeakSTRONG, a private SLP clinic designed specifically for people living with movement disorders.