This year, HSC is pleased to offer three virtual Community Education Forums (CEFs), as part of a seasonal series.
With our CEFs, HSC provides a forum wherein patients and carers can meet to learn about the most recent updates in HD, network with other patients and perhaps most importantly, have the opportunity to have their questions answered by leading professionals who specialize in HD.
We are working on confirming topics and speakers and cannot wait to share the line-up with you. Stay tuned to this page for updated details as they become available.
May 30, 2020 Community Education Forum
1:30 p.m. – 3:00 p.m. EDT
Learn to Fill Your Cup: Simple Tools to Relieve Stress and Caregiver Burnout and Optimize Health
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Natalie is a certified yoga therapist with over 1000 hours of training and 10 years of experience teaching. Her journey with yoga started after a traumatic car accident that left her in chronic pain. Born in a family with Huntington disease (HD), Natalie has spent many years caregiving for her mom and other family members. She’s been a volunteer with HSC for over 5 years, and currently sits as President of the Toronto Chapter as well as serving as a youth mentor for HSC. In 2010, she founded Sacred Mountain Yoga which provides yoga therapy, chair yoga and workshops around the GTA and online. As a person who has managed to reverse caregiver burnout, heal chronic pain and depression, she truly believes that even in dark times there is still hope for a better future. Her experiences give her a unique approach and she’s very passionate about helping others! |
CLICK BUTTON TO REGISTER FOR MAY 30 CEF.
Nov. 14 , 2020 Community Education Forum
1:30 p.m. – 3:00 p.m. EDT
Research Update
 Dr. Ed Wild, FRCP, PhD |
Dr. Ed Wild, FRCP, PhD Ed is Associate Director of University College London Huntington’s Disease Centre, and a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery. Ed has worked on HD since 2005 and leads a team focusing on clinical trials of new HD treatments and studying cerebrospinal fluid to understand HD. He has authored seven book chapters and over 80 peer-reviewed scientific publications and leads the global HDClarity study. Since 2009, he has been collaborating with Dr. Jeff Carroll to make HD research news accessible to the HD community through HDBuzz. Ed was a proud recipient of the HSC’s 2012 Michael Wright Community Leadership Award. |
 Dr. Jeff Carroll, PhD |
Jeff Carroll is a scientist studying HD as an associate professor at Western Washington University. He trained as a post-doctoral fellow in the lab of Marcy MacDonald at Massachusetts General Hospital/Harvard Medical School after completing his PhD under the supervision of Michael Hayden at UBC in Vancouver. He has worked for many years on Huntingtin-lowering experiments in mouse models – his recent work involves understanding what the Huntingtin protein’s normal roles are in cells, particularly with respect to DNA damage and repair. As well as conducting research, Jeff is a member of an HD family and himself carries the mutation which causes the disease. Jeff also co-founded and serves as co-editor-in-chief of HDBuzz.net with Dr. Ed Wild. |
CLICK BUTTON TO REGISTER FOR NOV. 14 CEF.
Nov. 14 , 2020 Community Education Forum
1:30 p.m. – 3:00 p.m. EDT
Stay Tuned for Topic!
 Speaker to be confirmed. Check back often! |
-> REGISTRATION TO OPEN SHORTLY. CHECK BACK OFTEN <-
Feb. 27, 2021 Community Education Forum
TIME TBD
Stay Tuned for Topic!
| Speaker to be confirmed. Check back often! |
-> REGISTRATION TO OPEN SHORTLY. CHECK BACK OFTEN <-