2020 Postcard from Palm Springs
Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
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Gillian Shay – Amaryllis Coordinator – NS
When did you first become involved in volunteering with the Huntington Society of Canada? Why did you decide to do so?
I started volunteering with the Huntington Society of Canada (HSC) about three years ago or for three Amaryllis campaigns (as I tend to view time with HSC!). The Halifax Chapter was looking for someone new to take on Amaryllis sales in the region and I thought it would be a small, manageable way to lend my support. However, over the past three years we’ve had tremendous success growing (both literally and figuratively) the support we receive from the community. I decided to volunteer because I don’t have a science background – I know I won’t be the one to find the cure – but what I can do is raise some money to help support the research into finding a way to treat the root cause of this horrible, wretched disease.
What does it mean to you to be a volunteer?
It means a lot to me to be a volunteer. I love knowing that East Coasters are always ready to open our hearts, and in this case, our wallets, to support hope for a brighter future. It’s only a few months a year but I love seeing pictures of Amaryllis and seeing the same people looking for Amaryllis year after year.
Can you describe the specific events or campaigns you have helped?
I’ve been focused on the Amaryllis campaign for the last three years, and this year will be our biggest and best yet!
What have been some of the benefits of volunteering?
The best benefit I’ve seen from volunteering is that it really brings out the best in our local community. To see the love and support from so many people in your life just looking for a way to express that for you is terrific.
Have there been any memorable/funny highlights from your time volunteering?
I love seeing people’s eyes light up when they can’t wait to tell me how much their flower has grown, or how beautiful it is, or how much their loved one appreciated receiving it. It warms my heart. I can certainly say I’ve gotten more out of the campaign than the work that goes into it.
Do you have a message for the Huntington disease community, or to someone considering volunteering for the cause?
Don’t be afraid to put your hand up. Some volunteer time is better than none and organizations wouldn’t be able to do the great work they do without you! It’s like Anne Frank wisely said, “No one has ever become poor by giving.”
