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HD Awareness Month


Welcome to Huntington disease (HD) Awareness Month 2024! Although every month is an important time to raise awareness about Huntington disease, each May we come together to offer a concentrated effort of education, community spirit and hope. This May, we are hosting many exciting events including the Huntington Heroes National Walk and our well known campaign, Light It Up 4 HD. Aside from these initiatives we will continue to educate and build awareness about HD throughout #HDAwarenessMonth with awareness videos and so much more, stay tuned!


Light It Up 4 HD: Buildings and structures across Canada and the world light up in blue (for HD) and purple (for juvenile HD) throughout May. This year we want to reach even more people so that those impacted can find hope as HD is brought out of the shadows and into the light.

Click here for a list of confirmed 2024 #LightItUp4HD sites so far. 


Huntington Heroes National Walk: Join the Huntington Heroes across Canada for the National Walk to raise funds to support our HD community. This May we are joining together in a united goal to walk 4000 km and raise $175,000 towards research and support services. There are a variety of in-person walks throughout the month or if you’re participating virtually, we are encouraging all participants to walk with us on May 25-26. When we come together we can do amazing things!

Register today: p2p.onecause.com/hscnationalwalk


Huntington disease (HD) Profiles – click on a profile below to read their HD story.


HD Awareness Month Videos: 

We hope you’ll participate! It’s easy to join in the movement. Here are a few things you can do:


To learn more about Huntington disease, check out our fact sheets: www.hdfactsheets.ca

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