HSC Factsheets

To connect with a member of our team for support resources or information on Huntington disease (HD), please reach out via our online link or by giving us a call.

For support group details and registration, click here.

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In an effort to expand our services to Huntington disease (HD) families, and to the general public, the following publications are available to download. The Huntington Society of Canada (HSC) is a charitable organization dependent on public support. A donation of any amount to HSC would help us to continue to make publications such as the fact sheets listed here available to the public. 

We have listed our most popular factsheets to start, and then in alphabetical order by topic after that.

You can access the factsheets by clicking on the link below the topic.

When printing a factsheet, select “Fit” under “Page Sizing & Handling” so the edges of the factsheet do not get cut off by your printer.

COVID-19

English	Version Française
COVID-19 Strategies, Ideas and Resources for Families	Bientôt disponible
COVID-19 and Fall/Winter Planning	Bientôt disponible

HD Facts

English	Version Française
What is HD?	Qu’est-ce que la MH?

Have you M.E.T. Huntington Disease?	Qu’en savez-vous sur la maladie de Huntington?
Juvenile HD	Form junvénile de la MH
Living At-Risk for HD	Vivre avec le risque de la MH

Caring for People Affected by HD

English	Version Française
Tips When Working with Individuals Affected by HD	Conseils pour travailler avec des personnes atteintes de MH
Caring for Carers and Families with HD	Aide aux aidants et aux families affectees par la MH
Improving Communication in Huntington Disease	Améliorer la communication en présence de la MH
Cognitive Changes in HD	Changements cognitifs et MH
Transitioning to Long-Term Care	Bientôt disponible

Behaviour

English	Version Française
Responsive Behaviour in Huntington Disease	Comportements réactifs et MH

Children

English	Version Française
A Child’s Response to HD	Réaction des enfant à la MH
Helping Children Cope	Aider les enfants à faire face à la MH
Talking to Children About HD	Parler de la MH à vos enfants

Clinical Trials

English	Version Française
Interested in Clinical Trials?	Intéressés par les essais cliniques?
Clinical Trials: Questions to Consider	Essais cliniques – Questions à poser

Criminal Offences and Law Enforcement

English	Version Française
Criminal Offences, Incarceration and Huntington Disease	Infractions pénales, incarcération et MH
Law Enforcement and HD

Dental

English	Version Française
Dental Care	Soins dentaires et MH

Depression

English	Version Française
Depression and HD	Dépression et MH

Driving

English	Version Française
Driving and HD	Bientôt disponible

Eating

English	Version Française
Eating and Swallowing	Alimentation et déglutition en présence de la MH
Feeding Tubes	Sonde d’alimentation et MH

Educational Modules

English	Version Française
Educational Modules	Bientôt disponible

End-of-Life Care

English	Version Française
End Of Life Care For People With Huntington disease End Of Life Options For People With Huntington disease	MH et soins de fin de vie

Exercise

English	Version Française
Exercise and HD	L’exercice et la MH

Leisure During Lockdown (and Beyond!)

Family Planning

English	Version Française
Family Planning	Planification familiale et MH

Future Planning

English	Version Française
Future Planning	Planification pour l’avenir

Genetic Discrimination

English	Version Française
Genetic Discrimination and the GNDA	Bientôt disponible

Genetic Testing

English	Version Française
Genetic Testing and HD	Tests génétiques et MH
Genetic Testing of Minors

Home Safety for People with HD

English	Version Française
Home Safety for People With HD	Sécurité à domicile des personnes atteintes de la MH

Insurance

English	Version Française
HSC Life And Health Insurance Tips	N/A

Intermediate Alleles

English	Version Française
Intermediate Alleles	Bientôt disponible

Physiotherapy

English	Version Française
Physiotherapy Guidelines Courtesy of European Huntington’s Disease Network	Maledie de Huntington kinésithérapie ergothérapie (extraits du Guide du Réseau Européen pour la Maladie de Huntington (E.H.D.N)

Safety

English	Version Française
Safety and Independence in HD	Bientôt disponible

Services from HSC

English	Version Française
We Are Here To Help	Bientôt disponible

Sexuality

English	Version Française
Sexuality and HD	Sexualité et maladie de Huntington

Travelling

English	Version Française
Travelling with Huntington Disease	Voyager avec un personne atteinte (par la MH)

Youth and Young Adult Mentorship Program

English	Version Française
Youth and Young Adult Mentorship Program	Programme de mentorat pour jeunes et jeunes adultes

Other HD Resources

The Huntington Society of Canada is committed to working with families affected by HD and health and social services professionals to enable them to better understand Huntington disease.

HSC collaborates globally to to ensure the most up-to-date information is available. We invite you to explore our HD resources.

Access our resources by clicking on the links below:

HSC Brochures	HSC Booklets & Publications	Other Resources