2020 Postcard from Palm Springs
Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
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Route 50: Driving Hope Forward
2023 was a special year, and we have something to share worthy of the occasion. The Huntington Society of Canada (HSC) turned 50 last year, and we have pulled together some highlights of the past five decades in this souvenir booklet available here: https://www.huntingtonsociety.ca/wp-content/uploads/2023/01/50th-Yearbook.pdf. Consider it your 2023 yearbook!
In the publication, we talk about where we’ve been, as well as where we’re going. The past 50 years have seen some incredible accomplishments in HSC’s mission, which is to improve the quality of life for those affected by HD. At the foundation of our mission are research and care. In spite of all of our strides in both areas, there is still so much more that we can do.
In fact, our theme for this milestone is Route 50: Driving Hope Forward. It is inspired by the formative cross-country camper van trips Ralph and Ariel Walker, HSC’s co-founders, embarked upon to meet families living with Huntington disease (HD), sharing information, resources – and hope.
It has been a great honour for HSC to be a part of the HD community for the past 50 years. We are empowered to reach for new heights in the 50 years to come.
Research Funding Opportunities
There are various research funding opportunities that would benefit greatly from your support. Make a difference by helping fund the following:
- Enhancing our Navigator Research Grant, offering more funding and for longer durations of study
- Investigating the root cause of HD
- Research into the impact of HD on people’s lives
- Supporting the HSC Endowed Research Chair at Western University
Family Services Funding Opportunities
Our number one goal is to expand support for all people in Canada affected by HD by enhancing social work services and support resources. Read about our proposed Centres for HD CARE here.
There are many other ways you can make it possible for HSC to offer support services to individuals and families affected by HD, in-person and virtually. Your donations help us:
- Meet increased demand for support services by adding social work hours
- Educate the medical and social services community to help them better understand HD and its impacts on the individual and families
- Expand front-line services in your community, supporting, educating, and advocating for those affected by HD
- Share educational materials and specialized HD consultation with care facilities
- Provide HSC youth mentors with training and support materials
- Fund community support groups, thus providing help to families
Read more about these groundbreaking new programs in HD research and care in the Route 50: Driving Hope Forward yearbook here.
Please help us connect the community with care, providing access to services and support during their HD journey – donate now.