Volume 12, Issue 9
GENETIC FAIRNESS
Why Insurers Are Wrong About Canada’s Genetic Non-Discrimination Law
University of Guelph News – September 14, 2017
Canada was the last member of the G7 to pass its own genetic discrimination law, Bill S-201, in May. It prevents insurance companies from using results of any genetic tests to determine coverage or pricing. Mike Hoy, Professor at University of Guelph’s Department of Economics and Finance, discusses why insurers have it wrong about the GNA. Click here to read the full article.
HSC NEWS
Huntington Society Stages Fundraising Walk Saturday
Cambridge Times – September 12, 2017
The Grand River Chapter of the Huntington Society of Canada is gearing up for its eighth annual Founders’ Walk this Saturday September 16th in Cambridge, Ontario. Click here to read the full article.
Go-Kart Event Raises Big Money for Huntington Disease
iHeartRadio – September 11, 2017
The 14th annual event raised more than $14,000 for Windsor-Essex families coping with the effects of Huntington disease. Click here to read the full article.
Windsor Chapter of the Huntington Society Races For A Cure
iHeartRadio – September 10, 2017
The Huntington Society of Canada’s Windsor Chapter raced to find a cure — by go-karting this past weekend. Paul Bateman, Chapter president, speaks to iHeartRadio about the event. Click here to read the full article.
Go-Karting For Huntington Awareness
Blackburn News – September 9, 2017
The Huntington Society of Canada celebrated a record fundraising year with a go-karting event at Zap Zone Fun Centre in west Windsor this past weekend. Click here to read the full article.
Summer Full of HDYO
HDYO Blog – August 30, 2017
Seth Rothberg sits on the Board of Trustees for the Huntington Disease Youth Organization (HDYO) and writes a blog post detailing his summer with HDYO, including highlights from their recent HDYO Camp that some of our YPAHD (Young People Affected by Huntington Disease) members went to! Click here to read the full article.
Speeding for Huntington Research
Winnipeg Free Press – August 25, 2017
The 22nd annual Indy Go-Kart Challenge for Huntington Disease took place on Sun., Sept. 10 at Thunder Rapids Amusement Park (5058 Portage Ave.) in Headingley with heats starting at 9 a.m. and 11 a.m. Click here to read the full article.
Amaryllis Campaign Early Bird Contest Winner Announced!
Many congratulations to the Amaryllis Campaign Early Bird Contest Winner: Jeanne from South River, Ontario. Please click here to read more about why Jeanne is an HSC Amaryllis Campaign enthusiast.
Champions of Hope
Did you know that a donation of $30/month enhances direct support services, including counseling, referrals and recreational programs for one person with HD for a year? Click here to learn more.
RESEARCH NEWS
Precision huntingtin-lowering drug trials target the mutant protein
HDBuzz – August 25, 2017
A new exciting chapter in Huntington disease (HD) treatment is just beginning – WAVE Life Sciences have announced PRECISION-HD1 and 2, clinical trials of two new drugs that lower the mutant Huntington disease protein. Click here to read the full article.
Enroll-HD – August 2017
Click here to check out the latest updates in Enroll-HD’s monthly bulletin.
