2020 Postcard from Palm Springs
Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
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National Support Groups
Registration Information
- For all groups, please register here: https://contactme.cloud/form/huntingtonsociety
- To register for a specific group, please select it from the drop-down box titled “reason”
- They are listed in alphabetical order by the name of the group
- We will send links for virtual meetings or specific address details following registration
- If there isn’t a registration close date listed, you can register anytime on a rolling basis
Click here for a description of the different types of groups.
1) National At-Risk/Gene Positive Virtual Group
- Every other Wednesday, 6:00 p.m. to 8:00 p.m. ET
- February 26 to June 4
- Maximum of 8 people per group
- Facilitated by Marla Buchholz, BSW, RSW and Erin Stephen, BSW, RSW
Schedule
- Feb. 26: Introductions
- Mar. 12: HD 101
- Mar. 26: Genetic Testing
- April 9: Research & Clinical Trials
- April 23: Navigating Relationships
- May 7: Family Planning
- May 21: Grief, Loss & Care
- June 4: Wrap up - Genetic Non-Discrimination Act, insurance, HSC resources and supports
Delivery: Virtual
Who Is This For: People who are living at-risk or are gene positive for Huntington disease
Registration closes Friday, Jan. 17