2020 Postcard from Palm Springs
Highlights from the 2020 CHDI HD Therapeutics Conference are now here! This year’s Postcard covers HTT-lowering therapeutics, including an
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Ontario Support Groups
Registration Information
- For all groups, please register here: https://contactme.cloud/form/huntingtonsociety
- To register for a specific group, please select it from the drop-down box titled “reason”
- They are listed in alphabetical order by the name of the group
- We will send links for virtual meetings or specific address details following registration
- If there isn’t a registration close date listed, you can register anytime on a rolling basis
Click here for a description of the different types of groups.
1) Ontario Virtual HD Community Drop-in
- One drop-in every month on Thursdays from 12:30 p.m. to 2 p.m. ET on the following days
- January 23
- February 27
- March 27
- April 24
- May 22
- June 26
- Facilitated by Rozi Andrejas (MSW, RSW) and Brooke Hurley, BA, MSW, RSW
Delivery: Virtual
Who Is This For: Individuals with Huntington disease and their families in the Toronto, Southwestern Ontario, East Central Ontario and Central Ontario regions
2) Niagara Carers Support Group
- Once a month – to be confirmed by the facilitator upon registration. 7:00 p.m. to 9:00 p.m. ET
- Year round
- Facilitated by Muna Young (BSW, RSW)
Delivery: In person (St. Catharines)
Who Is This For: Anyone who cares for someone with HD. Being a caregiver does not necessarily mean living with someone full-time. Caregiving is a role that changes over time. As HD is a multi-generational disease, caregivers might find themselves supporting various members of their family at different stages of the disease (at-risk, pre-symptomatic, symptomatic, and end-of-life). All are welcome.
3) Hamilton/Halton HD Community Support Group
- Once a month – to be confirmed by the facilitator upon registration. 7:00 p.m. to 9:00 p.m. ET
- Year round
- Facilitated by Muna Young (BSW, RSW)
Delivery: In person (Burlington)
Who Is This For: HD Community and family – people at-risk, gene positive or who have an HD diagnosis and their caregivers/family members
4) Ottawa Area Carers Support Group
- Third Thursday of the month 7:00 p.m. to 8:30 p.m. ET
- Year round
- Facilitated by Sheri Mayhew (Ed.D, M.Ed., RSW)
Delivery: Virtual
Who Is This For: Anyone who cares for someone with HD
5) Ontario Care Partners Virtual Support Group
- To be announced spring 2025
Delivery: Virtual
Who Is This For: Anyone who cares for someone with HD
6) Durham HD Community Support Group
- To be announced spring 2025
Delivery: To be confirmed
Who Is This For: Individuals with Huntington disease and their families
7) Barrie HD Community Support Group
- To be announced spring 2025
Delivery: To be confirmed
Who Is This For: Individuals with Huntington disease and their families
8) Peterborough HD Community Support Group
- To be announced spring 2025
Delivery: To be confirmed
Who Is This For: Individuals with Huntington disease and their families
9) Kingston Area Carers Support Group
- To be announced spring 2025
Delivery: To be confirmed
Who Is This For: Anyone who cares for someone with HD